Psoriatic Arthritis Impact of Disease (PsAID)

The Psoriatic Arthritis Impact of Disease (PsAID) questionnaires (PsAID‑12 and PsAID‑9) are patient‑reported outcome measures specifically developed to capture the impact of PsA on people’s lives. They were created with strong patient involvement across Europe to ensure that the domains and weights reflect what matters most to patients. PsAID‑12 includes items such as pain, fatigue, skin problems, work/leisure activities, functional capacity, sleep, coping, anxiety, feeling of embarrassment/shame and social participation; PsAID‑9 uses a shorter subset.

Each domain is scored on a numerical rating scale and weighted according to its relative importance to patients, resulting in a total score between 0 and 10. Lower scores indicate less impact of disease. The PsAID has shown good reliability, validity and responsiveness to change, and is recommended by EULAR as a core patient‑centred outcome for use alongside clinical disease activity measures in PsA.

In clinical practice, PsAID can help clinicians understand aspects of disease burden that may not be fully captured by joint counts or skin scores—for example, fatigue, emotional impact, work participation and social life. It can be administered as a paper or electronic questionnaire and repeated over time to monitor changes with treatment, self‑management and rehabilitation.

Using PsAID in routine care supports a more holistic, patient‑centred approach and aligns with “treat‑to‑target” strategies that aim not only for low disease activity, but also for improved quality of life and functioning.

Key references

1. Gossec L et al. A patient‑derived and patient‑reported outcome measure for psoriatic arthritis: the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire. Ann Rheum Dis. 2014;73(6):1012–1019.

2. Gossec L et al. EULAR recommendations for the management of psoriatic arthritis with pharmacological therapies. Ann Rheum Dis. 2016;75(3):499–510. (PsAID as recommended outcome.)

3. Urruticoechea‑Arana A et al. Psoriatic arthritis screening: a systematic literature review and experts’ recommendations. PLoS One. 2021;16(3):e0248571.

Reviewed: August 2026

Version ID: 2/PAI/AAR/08/26