Be part of the solution and make a difference
Psoriatic disease doesn’t always follow the rule book. For many people, psoriasis or psoriatic arthritis begins with a bewildering mix of flares, fatigue, pain, and uncertainty. Every day tasks become harder, sleep is broken, and work or family life can feel as if it is shrinking around the condition.
For PAPAA, with more than 30 years of listening to real people has shown that information, empathy, and timely treatment can gradually turn that picture around. Flares may not disappear overnight, but people often describe a quiet shift; understanding what is happening inside their body, feeling heard, and starting treatments or self‑management strategies that help them regain control.
Research now supports this change in outlook. Studies of psoriatic arthritis show that when moderate‑to‑severe disease is treated early and intensively, using combinations of conventional drugs or biologic therapies, people can achieve better disease control and sustain benefits over time, compared with a slow ‘wait and see’ approach.
International groups have also agreed on new definitions for difficult‑to‑manage psoriatic arthritis, recognising that some people need more tailored, multidisciplinary care, and that their experience is valid and deserves focused attention.
PAPAA’s role is to help you move, at your pace, from flare towards flourishing. Our free, evidence‑based information explains psoriasis and psoriatic arthritis in clear language, so you can make sense of your diagnosis and treatment options. Our online resources and Skin ’n’ Bones Connection journal bring together expert guidance and real‑life stories that show how others have found ways to balance treatment, work, family, and wellbeing.
In 2026, we will be sharing more information on how to flourish with psoriatic disease, alongside updates on new research and treatments. If new to the condition, a good place to start is here.
If you would like to tell your story or suggest a topic you want us to cover, we would love to hear from you.