Your chance to be part of the solution...: Psoriasis treatments

Organisation or institution: The Dudley Group NHS Foundation Trust / University of Nottingham

Main study contact: rheanne.leatherland@nottingham.ac.uk

Public contact details: psoar@nottingham.ac.uk

Description of activity: This study aims to run focus groups that aim to understand patient's experience of living with anogenital psoriasis and discuss treatments they have used.

Recruit criteria: Any adult with an anogenital psoriasis diagnosis (by a dermatology specialist). Interested in participating in a research project looking at the treatment options of anogenital psoriasis. Able to attend an online focus group with 3-5 participants.

Where? Online via Microsoft Teams

Time commitment: 1 - 2 hours

Closing date: 01.03.2025 (may be extended)

Funder/sponsor: UK Dermatology Clinical Trials Network (UKDCTN)

Organisation or institution: Atlas Primary

Contact: shannon.coates@virtueresearch.com

Description of activity:  7 waves of research are being conducted for psoriasis and the goal is to reach 100 patient's with each wave of research with a 15 minute long survey.

Recruit criteria: Psoriasis patient's in the USA, >18 years of age, currently receiving treatment.

Where? USA

Time commitment: Each wave is a month long.

Closing date: Each month, will have a new wave for patient's to participate in.

Funder/sponsor: Atlas Primary

Please note:

• This study is an external opportunity and not connected to PAPAA in any form.
• PAPAA has not received any payment for placing this notice.
• Postings in this section are to provide information about opportunities and should not been seen as an endorsement or recommendation to take part.

This opportunity is now closed

Organisation or institution: University of Oxford.

Main study contact: Lija James

Public contact details

Email: lija.james@ndorms.ox.ac.uk

or  through QR code registration

Description of activity: We are looking for people to join our patient partner group for the COLIPSO study. This study will investigate the extent of liver disease in psoriatic disease. Patients with psoriatic disease have a much higher risk of developing non-alcoholic liver disease. 

This causes significant impact on their life and is a difficult clinical problem as some therapies for psoriasis and arthritis may worsen the liver disease.  Previously the only tests available have been blood tests (which are often normal until the liver is quite damaged) or a liver biopsy (an invasive and risky procedure which only takes a very small sample of the liver).

Our colleagues have developed and tested a new type of MRI scan which can measure inflammation and scarring in the liver allowing us to study liver disease in detail.

We want to use this new technology to study the proportion of people with psoriasis who also have associated liver disease and measure how severe this is.  We will use blood and stool samples to study why and how the liver disease develops in many people with psoriatic disease. 

We will repeat the scans and research samples after 6 months on a new treatment to see how common psoriasis treatments affect both inflammation and scarring in liver disease.

Recruit criteria: Individuals with a diagnosis of psoriatic arthritis.

Where? Remote session on Zoom

Time commitment: 1 hour online session

Closing date: 19/12/2023

Funder/sponsor: National Psoriasis Foundation. Perspectum. UCB Biopharma SRL.

Please note:

• This study is an external opportunity and not connected to PAPAA in any form.
• PAPAA has not received any payment for placing this notice.
• Postings in this section are to provide information about opportunities and should not been seen as an endorsement or recommendation to take part.

This opportunity is now closed

Organisation or institution: Exafield UK

Main study contact: Laura Girvan

Public contact details: girvan@exafield.com

Description of activity: My name is Laura and I work for Exafield. We are conducting a study that involves patients with Psoriasis and/or psoriatic arthritis.

We want to contact patients suffering from psoriasis and/or psoriatic arthritis that would like to join us for a 60 minute online interview about their perspective on these conditions.

The project consists of a 60-minute online (web-assisted telephone interview) and should they decide to join us they will receive £60 reimbursement for their participation, which is payable via cheque or BACs.

We have a screening form we would like to direct any participants to, it can be found here 

Recruit criteria: patients with psoriasis and/or psoriatic arthritis

Where? Remote, online interviews

Time commitment: 60 minutes

Closing date: End of June 2023

Funder/sponsor: Exafield UK

Please note:

• This study is an external opportunity and not connected to PAPAA in any form.
• PAPAA has not received any payment for placing this notice.
• Postings in this section are to provide information about opportunities and should not been seen as an endorsement or recommendation to take part.

This study is now closed

Organisation or institution:  Just-Worldwide and Branding Science

Main study contact: Kristen Saylor

Public contact details: Kristen@just-worldwide, 609-955-8607

Description of activity: This is a year long research study regarding the GPP Patient experience. It consists of 4 phases ( roughly one for each quarter of the year) Each phase will include: - 10min intro call (just one quick call during project life cycle) - 10min online community task - 60min WATDI call - 15min online/ppt pre-task - Flare diary is an optional component Qualified respondents that participate in this project will be paid for each assignment completed as well as a bonus when all tasks are completed in a each phase

Recruit criteria:

• Confirmed diagnosis of GPP 
• 1+ months since confirmed diagnosis (mix of recently diagnosed and longer diagnosed patients – aim for a soft quota of 50/50) 
• Mix of age ranges (18-65 years) & genders
• Experienced at least one flare in the past yea

Where? Remote

Time commitment: 1 full year

Closing date: 17 March 2024

Funder/sponsor: Branding Science LLC.

Please note:

• This study is an external opportunity and not connected to PAPAA in any form.
• PAPAA has not received any payment for placing this notice.
• Postings in this section are to provide information about opportunities and should not been seen as an endorsement or recommendation to take part.

This study is now closed

Organisation or institution

Department of Rheumatology and Clinical Immunology at the Amsterdam UMC, location AMC

Main study contact: Dr. Marleen van de Sande

Public contact details: kir@amsterdamumc.nl

Description of activity: Up to 1 in 3 people who have psoriasis can go on to develop a related arthritis causing joint pain and disability.

Researchers are exploring whether it might be possible to treat people who have psoriasis to reduce their risk of developing psoriatic arthritis.

This survey aims to understand what medications or lifestyle changes would be acceptable to people with psoriasis to reduce their chances of developing psoriatic arthritis in the future.

Understanding patients’ preferences is important to ensure future treatments of this kind are efficient and acceptable to patients. This survey is a one-time questionnaire that should not take longer than 20 minutes to complete. Participation is voluntary, and all responses to the survey will remain confidential and anonymous.

This study is in collaboration with Dr. Laura Coates (Principal investigator, Associate Professor, rheumatologist Oxford), Dr. Marie Falahee (Lecturer in Behavioral Rheumatology, University of Birmingham), Dr. Jorien Veldwijk (Assistant-professor, Erasmus School of Health Policy & Management), Prof. Stephen Pennington (Professor Of Proteomics, University College Dublin) and Prof. Oliver FitzGerald (Newman Clinical Research Professor, University College Dublin).

Recruit criteria: You can take part in this survey if you:

• Are aged 18 years or older
• Have been diagnosed by a doctor as having psoriasis
• Currently living in the United Kingdom
• Are able to read and complete a survey that is in English
• Have not been diagnosed by a doctor as having psoriatic arthritis

Where? Remote, it's an online survey

Time commitment: 20 minutes

Please note:

• This study is an external opportunity and not connected to PAPAA in any form.
• PAPAA has not received any payment for placing this notice.
• Postings in this section are to provide information about opportunities and should not been seen as an endorsement or recommendation to take part.